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  • Medische zorg - Epilepsie Vereniging Nederland
    derden links naar domeinen op deze website NVS ketogeen dieet MAD chirurgie dbs links naar relevante websites op epilepsiegebied Deze pagina delen Print deze pagina Professionals Voor iedereen die werkt met of voor mensen met epilepsie Forum Forum EpilepsiePlus Activiteiten Professionals Medische zorg Publicaties niet medicamenteuze behandelingen Tandheelkundige zorg Onderwijs Zorg Therapeuten Werk Epilepsie Vereniging Nederland EVN Postbus 258 3990 GB Houten Bezoekadres De Molen 35 Telefoon 030 63 440

    Original URL path: http://www.epilepsievereniging.nl/professionals/medische-sector/ (2016-01-11)
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  • Publicaties niet-medicamenteuze behandelingen - Epilepsie Vereniging Nederland
    organization The goal of the EVN is to improve the quality of life for people with epilepsy and their families and friends An optimal treatment of epileptic seizures is of great importance with this The EVN is of course not an organization that gives people medical treatments but sees some duties for itself which may effect the result of the professional treatment Offering information to people with epilepsy or to parents with a child who has epilepsy is an example of this A patient who is well informed could even together with the medical practitioner be of great importance for the results to be obtained Not only well informed patients are important but also medical practitioners who have up to date knowledge about the developments of treatments The EVN would like to play a part in this Especially in the field of providing information about the non pharmacological treatments the EVN sees possibilities to serve professionals in epilepsy care We aim at Epilepsy Surgery Vagus Nerve Stimulation the Ketogenic diet and Deep Brain Stimulation The EVN started collaboration with Prof Van Nieuwenhuizen an emeritus professor of pediatric neurology He has been found willing to create a monthly publication update from scientific articles about non pharmacological treatments in epilepsy We would like to start with information about the development of VNS as treatment for example epilepsy with regard to Vagus Nerve Stimulation VNS It will not be censored and all articles offered through PubMed are passed in review Every month two to three publications will be thoroughly discussed by Prof Van Nieuwenhuizen Here you can find his CV and publication list Download his CV and Publication list Deze pagina delen Print deze pagina Professionals Voor iedereen die werkt met of voor mensen met epilepsie Forum Forum EpilepsiePlus Activiteiten Professionals Medische zorg

    Original URL path: http://www.epilepsievereniging.nl/professionals/medische-sector/publicaties-niet-medicamenteuze-behandelingen/ (2016-01-11)
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  • Nervus Vagus Stimulatie (VNS) - Epilepsie Vereniging Nederland
    a patient with a vagal nerve stimulation device Additional publications January 2014 Publication Update 3 VNS A systematic review of the effects of neuromodulation on eating and body weight evidence from human and animal studies Combination of Corpus Callosotomy and vagus nerve stimulation in the treatment of refractory epilepsy Vagus nerve stimulation in pediatric patients Is it really worthwhile Additional publications November December 2013 Publication Update 2 VNS Efficacy of vagus nerve stimulation as a treatment for medically intractable epilepsy in brain tumor patients A case controlled study using the VNS therapy Patient Outcome Registry Neuromodulation of chronic headaches position statement from the European Headache Federation Neuroprotective effects of vagus nerve stimulation on hippocampal neurons in intractable epilepsy Additonal publications October 2013 Publication Update 1 VNS Evidence based guideline update Vagus nerve stimulation for the treamtent of epilepsy Report of the Guideline Development Subcomittee of the American Academy of Neurology Vagal Nerve stimulation in children under 12 years old with medically intractable epilepsy Long term outcome after callosotomy or vagus nerve stimulation in consecutive prospective cohorts of children with Lennox Gastaut or Lennox like syndrome and non specific MRI findings Additional Publications September 2013 If you would like to respond to the content of the VNS Updates please mail to VNS Update epilepsievereniging nl Deze pagina delen Print deze pagina Professionals Voor iedereen die werkt met of voor mensen met epilepsie Forum Forum EpilepsiePlus Activiteiten Professionals Medische zorg Publicaties niet medicamenteuze behandelingen Nervus Vagus Stimulatie VNS Vagus nerve stimulation for drug resistant epilepsy Treatment of epilepsy by stimulation of the vagus nerve from Head and Neck surgical point of view Vagus nerve stimulation magnet activation for seizures The long term effect of VNS on QoL in patients with pharmacoresistant focal epilepsy Palliative epilepsy surgery in Aicardi syndrome Neuroimaging and electroencephalographic

    Original URL path: http://www.epilepsievereniging.nl/professionals/medische-sector/publicaties-niet-medicamenteuze-behandelingen/nervus-vagus-stimulatie/ (2016-01-11)
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  • Vagus nerve stimulation for drug-resistant epilepsy - Epilepsie Vereniging Nederland
    6 12 and 24 months respectively Efficacy in patients 12 years of age was statistically significant compared to efficacy in patients 12 Quality of life assessment QOL showed improvement over time from 12 to 24 months of all QOL factors Regarding the clinician s assessment of the patient s over all condition 32 5 and 41 5 of patients were much improved or very much improved at 12 and 24 months In post hoc analyses a statistically significant correlation between VNS total charge delivered by day and increase in response rate was found Concerning safety issues 77 patients 22 reported at least one treatment emergent adverse event In 30 patients convulsions were reported but were not considered to be related to VNS Lead damage was reported in 19 patients 5 4 medical device change in 15 4 2 device removal in 13 3 7 device related infection in 9 2 5 device related complication in 6 1 7 dysphonia in 3 0 8 and issue related to device lead in 4 1 1 Discussion the results presented here are comparable with the responder rates from randomized controlled trial of new anti epileptic drugs 38 of patients with VNS therapy were responders at 12 months In a subset analysis of patients 12 years efficacy was shown to be statistically better compared to 12 years http www ncbi nlm nih gov pubmed 25231724 Comments reviewer prof Van Nieuwenhuizen The demonstration of greater efficacy in a subset 12 provides an important message as this finding will stimulate earlier application of this mode of therapy with even more efficacy What is also important is the finding that VNS is effective in dramatic epilepsy syndromes such as Dravet and Lennox Gastaut VNS publications overview Deze pagina delen Print deze pagina Professionals Voor iedereen die werkt

    Original URL path: http://www.epilepsievereniging.nl/professionals/medische-sector/publicaties-niet-medicamenteuze-behandelingen/nervus-vagus-stimulatie/vagus-nerve-stimulation-drug-resistant-epilepsy/ (2016-01-11)
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  • Treatment of epilepsy by stimulation of the vagus nerve from Head-and-Neck surgical point of view - Epilepsie Vereniging Nederland
    stated application of this technique provides the following advantages Choosing for a lower neck incision makes it possible to avoid damage to major veins and no lymph nodes are located in the carotid sheath The distance between the two incisions is shorter the operating time is short 40 min The location of the electrodes is well distanced from the larynx and the cardiac branches of the vagus nerve as well as from the origin of the recurrent aryngeal nerve which minimizes the rate of side effects such as bradycardia cough and hoarseness 4 2 of the patients were afflicted by complications related to surgery and one patient 1 4 suffered from hardware malfunctions Side effects related to VNS therapy itself occurred in seven cases 6 9 The operation scars are hardly visible as is the bulge of the battery The battery is protected by the muscle from accidental impacts in particular important for mentally and or behaviourally handicapped patients It is hardly imaginable that so few studies have been carried out and published with regards to operation technique of VNS Therapy The authors stand up for a lower neck incision and axillar implantation Their arguments make sense However it s one study in one centre It would be interesting and necessary to see whether their results can be reproduced in an open randomized controlled trial VNS publications overview Deze pagina delen Print deze pagina Professionals Voor iedereen die werkt met of voor mensen met epilepsie Forum Forum EpilepsiePlus Activiteiten Professionals Medische zorg Publicaties niet medicamenteuze behandelingen Nervus Vagus Stimulatie VNS Vagus nerve stimulation for drug resistant epilepsy Treatment of epilepsy by stimulation of the vagus nerve from Head and Neck surgical point of view Vagus nerve stimulation magnet activation for seizures The long term effect of VNS on QoL in

    Original URL path: http://www.epilepsievereniging.nl/professionals/medische-sector/publicaties-niet-medicamenteuze-behandelingen/nervus-vagus-stimulatie/treatment-of-epilepsy-by-stimulation-of-the-vagus-nerve-from-head-and-neck-surgical-point-of-view/ (2016-01-11)
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  • Vagus nerve stimulation magnet activation for seizures - Epilepsie Vereniging Nederland
    data based on patient and caregiver report Benefit of magnet stimulation was reported in a weighted average of 45 seizure cessation was reported in a weighted average of 28 of patients Some patients reported decrease of intensity or duration of seizures or of duration of post ictal period One study reported one patient with worsening with magnet stimulation Concerning safety issues identical non serious adverse events were reported on manual magnet stimulation as were seen in VNS therapy Discussion no randomized studies magnet mode stimulation vs no magnet activation in response to seizure were found The reported benefit varied widely from 11 89 In reviewing the data it was impossible to differentiate between direct impact of magnet stimulation and other factors such as inhibition of seizure by alerting and mobilising necessary to use the magnet placebo effect etc http www ncbi nlm nih gov pubmed 25145652 Comments reviewer prof Van Nieuwenhuizen this review provides important data about 50 of patients report benefit of manual magnet stimulation 28 report seizure cessation Therefore magnet stimulation may be considered to be effective This forms the indication for automatic activation of stimulation Changes in heart rate at or near seizure onset enable automated responsive stimulation This is an important approach as 40 60 of patients with epilepsy are unaware of their seizures VNS publications overview Deze pagina delen Print deze pagina Professionals Voor iedereen die werkt met of voor mensen met epilepsie Forum Forum EpilepsiePlus Activiteiten Professionals Medische zorg Publicaties niet medicamenteuze behandelingen Nervus Vagus Stimulatie VNS Vagus nerve stimulation for drug resistant epilepsy Treatment of epilepsy by stimulation of the vagus nerve from Head and Neck surgical point of view Vagus nerve stimulation magnet activation for seizures The long term effect of VNS on QoL in patients with pharmacoresistant focal epilepsy Palliative epilepsy

    Original URL path: http://www.epilepsievereniging.nl/professionals/medische-sector/publicaties-niet-medicamenteuze-behandelingen/nervus-vagus-stimulatie/vagus-nerve-stimulation-magnet-activation-seizures-critical-review/ (2016-01-11)
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  • The long-term effect of VNS on QoL in patients with pharmacoresistant focal epilepsy - Epilepsie Vereniging Nederland
    seizure frequency Centre for Epidemiologic Studies Depression scale CES D Neurological Disorders Depression Inventory Epilepsy scale NDDI E Clinical Global Impression Improvement scale CGI I Adverse Event Profile AEP and antiepileptic drug load AED The study was prematurely terminated due to recruitment difficulties prior to completing the planned enrolment of n 362 Results for n 96 who had baseline and at least one follow up QUOLIE 89 assessment from months 3 12 were included in this analysis Mixed model repeated measures MMRM analysis of variance was performed on change from baseline for the primary and secondary endpoints Results Significant between group differences in favour of VNS BMP were observed regarding improvement in HrQoL seizure frequency and CGI score respective p values 0 05 0 03 and 0 01 l More patients in the VNS BMP group 43 reported adverse events AEs versus BMP group 21 p 0 01 a difference reflecting primarily mostly transient AEs related to VNS implantation or stimulation No significant difference between treatment groups was observed for changes in CES D NDDI E AEP and AED load Significance VNS therapy as a treatment adjunct to BMP in patients with pharmacoresistant focal seizures was associated with a significant improvement in HrQoL compared with BMP alone http www ncbi nlm nih gov pubmed 24754318 Comments reviewer prof Van Nieuwenhuizen this is an important study based on data from a considerable number of centres 28 The starting point VNS BMP versus BMP is for clinicians extremely relevant because it reflects daily clinical practice doing the best you can for the patient not being tied to rigid protocols regarding AED dosage or VNS parameters The study had to labour under recruitment difficulties Low enrolment was caused by strong positive or negative views on VNS in most study candidates This patient attitude can also be found in AED studies RCT including sham operations or device switched off design could not be considered for ethical reasons Only 7 patients achieved 2 year follow up 96 patients 48 allocated to VNS BMP and 48 to BMP had baseline data and at least one post baseline follow up At termination of the study sixty of the 96 patients had completed their one year follow up 55 of the sixty patients had QuOLIE 89 data available at each visit 0 3 6 9 12 months However the final number of included patients allowed important messages based on adequate statistical analyses improvement in HrQoL being the most striking whereas significant decrease of seizure frequency is obviously equally important for patients suffering of epilepsy Adverse events were more frequently reported in the VNS BMP group related to implantation of the device and electrical stimulation within VNS scheme VNS publications overview Deze pagina delen Print deze pagina Professionals Voor iedereen die werkt met of voor mensen met epilepsie Forum Forum EpilepsiePlus Activiteiten Professionals Medische zorg Publicaties niet medicamenteuze behandelingen Nervus Vagus Stimulatie VNS Vagus nerve stimulation for drug resistant epilepsy Treatment of epilepsy by stimulation of the vagus nerve

    Original URL path: http://www.epilepsievereniging.nl/professionals/medische-sector/publicaties-niet-medicamenteuze-behandelingen/nervus-vagus-stimulatie/long-term-effect-vns-qol-patients-pharmacoresistant-focal-epilepsy/ (2016-01-11)
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  • Palliative epilepsy surgery in Aicardi syndrome - Epilepsie Vereniging Nederland
    seizures In patient 3 VNS was implanted together with a cystoperitoneal shunt at the age of 11 years There was some positive effect on seizure frequency but she kept having drop attacks and myoclonic seizures with VNS at highest setting At age 16 a new device was installed which resulted in considerable improvement 4 years later a sudden worsening of epilepsy was seen A microfracture of the lead between pulse generator and electrodes was found and again a new device was implanted This induced new improvement and at the age of 21 her epilepsy is well controlled with VNS and clobazam In patient 4 VNS was implanted at the age of 7 years 6 months post operatively no effect nor negative nor positive on her epilepsy could be found http www ncbi nlm nih gov pubmed 23948796 Comments reviewer prof Van Nieuwenhuizen Because of the rareness of AS no substantial trials on effects of treatment can be found This paper also deals with only a few cases In one patient a convincing effect of CC was demonstrated In the other case treatment outcome in VNS plus CC or in VNS alone is less clear or even negative Patient 3 is interesting while the effect of critical analysis of the device revealed a technical failure which could be corrected for the benefit of the patient VNS publications overview Deze pagina delen Print deze pagina Professionals Voor iedereen die werkt met of voor mensen met epilepsie Forum Forum EpilepsiePlus Activiteiten Professionals Medische zorg Publicaties niet medicamenteuze behandelingen Nervus Vagus Stimulatie VNS Vagus nerve stimulation for drug resistant epilepsy Treatment of epilepsy by stimulation of the vagus nerve from Head and Neck surgical point of view Vagus nerve stimulation magnet activation for seizures The long term effect of VNS on QoL in patients

    Original URL path: http://www.epilepsievereniging.nl/professionals/medische-sector/publicaties-niet-medicamenteuze-behandelingen/nervus-vagus-stimulatie/palliative-epilepsy-surgery-aicardi-syndrome/ (2016-01-11)
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